Do you experience moments where your bones seem to be on fire? Or perhaps, you feel burning sensations on your back and under the skin. This is very common among fibromyalgia patients. Read on to find out what causes burning sensation in fibromyalgia.
What Causes Burning Sensations in Fibromyalgia?
According to experts, the pain that fibromyalgia patients feel is due to a “glitch” in the way the body processes pain. As a result of this glitch, fibromyalgia patients are likely hypersensitive to stimuli, which thus, leads to pain. Consequently, your body sometimes register stimuli as a burning sensation.
This burning sensation can also be explained with allodynia, where one feels pain from a non-painful stimulation of the skin. This type of pain is often associated with migraine. However, most fibromyalgia sufferers do not need to be touched to feel the burning sensation. Hence, although allodynia is common in fibro patients, it is not necessarily the trigger of burning sensation in all cases.
In general, however, there seems to be almost nothing that can explain the symptoms of fibromyalgia. This is one of the greatest mysteries that surround this strange condition.
I began waking up with my skin on fire approximately two years ago. I have been unwell for 17 years now and am severe.
Every morning when I awake it is like someone is holding me down next to an electric fire, I burn all over, even my scalp. It is like a form of torture and is unbearable to the extent that I dread waking up now. I also, roughly every six weeks wake up completely wet through, the bedding is saturated as if I have gone straight from the shower into bed. Life shouldn’t be like this. I get some relief once I have taken opioid pain relief and had something to eat and drink. I also burn in my genital area, have just had a uti which lasted 8 weeks and has taken four courses of antibiotivpcs to clear. I was unaware that this was related to Fibromyalgia and was thinking this was due to chronic Lyme.
Is this common then please?
I write this to all of you that suffer daily from this horrifying pain that just will not STOP! Diagnosed in 1998, and now 57,it has totally stripped me of the life I loved, and knew. I was in the public eye, as a D. J by. Night, a wedding Coordinator and floral Designer by day.
Today, all I have are memories of those wonderful times, now my body is fatigued, sore everywhere, migraines,and I have to force myself to even move from the recliner to eat something during the day.
I have a wonderful man in my life, but my depression along with everything else, I feel useless to him. He’s 5yrs younger than I, and does most everything around the house, plus works. My body is tired, my mind can’t handle the fog, and I don’t look forward to anything anymore. I don’t think my partner understands how fibromalgia works on the body and the mind. He says he loves me, and wants to get married, but, I feel he deserves so much more of a woman than me, with a chronic illness that’s never going away.
I’m alone all day, everyday, and I’m just tired !!!!!
I can so relate to your post. I was nearly bedridden and near suicidal. dx in 2000 with chronic fatigue and fibromyalgia. My symp got better but in 2011 my fibro came back full force and the pain was debilitating. in May 2017 i began a 4 day all broth/ liquid fast…after 4 days i felt pretty good. so i continued doing an intermittent fast daily along with a ketogenic diet. my fibromyalgia sx were nearly gone in 10 days. so, im sticking with it. for 4 years i was in constant pain, horrible brain fog, horrible insomnia. since doing fasting and ketogenic diet ive discovered many food sensitivities. the following foods cause my joints to hurt, muscle aches, headaches, burning pain, brain fog…etc…basically all the fibr sx. they are: tomatoes, all niteshades, all citrus fruits, breads, wheat, gluten, grains etc, soy, dairy..esp yogurts…but some cheese are ok for me. as soon as i consume any of these my fibr sx come back. I have felt amazing the last 5 mon..better than ever in the last 17 yrs. very minimal fibro related pain. havent needed pain meds since May. I do a ketogenic diet…started with a book I found online called 30day keto cleanse by Maria Emmerich. Started there….in 10 days i had soooo much relief. check out book at library? ive also seen in at Costco few time. she has several books..but the 30 day cleanse is how I got started.
Oh wow do I know how you feel GF. I’m soooo tired all the time and have a wonderful husband that takes great care of me. He loves me unconditionally and would sell his sole to the devil for me to be well. If this man loves you like he says he does and he’s already taking care of you why would you want to let that go? I would count my blessings and kiss the ground he walks on for wanting and being there for you. Just saying
My Dear Evelyn,
Your story made my heart hurt so badly for you. I pray you have a good Dr, and Rheumatologist.
If you dont please find them now.
I was diagnosed oct 2016.I am now 55. My Name is Suzy. My email is email@example.com. I am in Indiana and would love to help you in any way I can. Not only do I have Fibro, but also Psoriasis and psoriatic Arthritis. I have yet another comllication that makes me hard to treat. In 2 visits to my Dr at diagnosis I went from 2 meds a day to 6 for a total of 11 pills and creams ect a day. The first 2 meds were antidepressants and a horrible mistake. I have made up my mind to shop for a new Dr because those 2 meds nearly killed me and he is intent on putting me back on one. He did not ween me off he simply took them from me and withdrawal is worse than walking through hell barefoot. 4/6/18
I pray for healing and a more pain free exsistance for you today and going forward.
Except for the super boyfriend, I felt u were writing about me.
Plz know u r not alone! Hang in there!
I pray this scripture will bring u some comfort. Rev. 21:3&4.
What supplements can help with the burning/heating feeling.
Gabapentin 900mgs a day.,
Addressing your nutrient deficiency may help to alleviate this symptom. The most common nutrient deficiencies found in fibromyalgia patients are Magnesium, Vitamin D and Vitamin B12. You can read more in this link:
Malic acid is found to have help reduce muscle pain and elevate energy in fibromyalgia.
Alpha lipoic acid, a potent metabolic antioxidant, also shows promising results in reducing pain in fibromyalgia too. However, it can have complications with several medications.
There are also many herbs that are found to help with fibro pain
It is better to first know which nutrient(s) is lacking in your diet/body before you start on any supplements. You may want to get a full body examination and consult your doctor before starting any supplements.
I used Havening Technique a light form of hypnosis because I got fibro through mental trauma. I thought if I healed my anxiety/stress it might help. 10 minutes with the therapist worked wonders: burning heat GONE/muscle tissue softened up. Not cured – but now bearable. Get on YouTube search for it & try it if it didnt arrive through physical trauma. All the best!
I also find that regular Chiropractic care is a HUUUGE help for my symptoms.
me too. LOVE my chiropractor!!
I have Poly myalgia rheumatica, is this quiet common also. I do not hear of this often like I do fibromyalgia? I have most of the same symptoms as fibromyalgia.
I have asked, and asked. Thank-you
We wrote an article comparing fibromyalgia and Polymyalgia previously. Hope it can help you. Here is the link:
Hiia and Lisa
Glad to hear that as have just started some and it does seem to be helping
Thought I’d try reflexology too as feet v bad ..
Just need to keep working to pay for it!!
Best wishes to all
Hello evey one, I’m 62 was diagnosed with fibroyalgia 32 years ago, was suffering with pain for years before that, no one can figure out. It is 100 times worst now. Also have ostheo arthritis, lung problems waited 18 months to see a resparologist. Seing her on monday. Also Have alot of nerve pain, on meds for that only when needed cant take the pain and 2 pinched nerves in my spine that are under control right now with exercises doing. Incontenance problems for about 20 years now. Any meds I take , have allot of side affects, very sensitive to meds. Cant take anything for depression , deal with it on my own. My pain ,I use advil, and a natural spray called. “That stuff for pain.” It helps me stay mobile. I have a great husband who is pretty understanding for 45 years now Very helpful and cares alot about how I feel. Sometimes he can’t touch me, to sensative. He’s ok with it. I cry allot and pray for stenght to keep going. Cant do some things I could do last year even but I keep going, do what I can, when I can ,push myself allot or I would be debelitated by the depression. I have 3 daughters that are great and 7 grandchildren from 12 years old to 20, that makes me want to keep going. I exercise when I can, do my own physio, and other exercises for different parts of my body that I have problems with all my life. I have a great doctor who sees me allot so I don’t fall apart. to all of you who suffer, don’t give up, you have to find your own thing that will help you with this condition. Take care and God bless
I was diagnosed with fibromyalgia years ago at the Horder acentre. I developed thrombosis probably because of after cancer medication, this has left me with post thrombotic syndrome symptoms varicose eczema. The top of my left leg and the whole of the right constantly itch and burn but it’s on the inside of my skin so no creams help. My doctor has tried to help but I’m fed up with taking drugs to “see if they’ll help”, I’ve had numerous scans and seen a dermatologist, nothing helps
Diagnosed in 1998, with FMS,CF,MFPS and had been diagnosed with severe migraines at 18. I was a Special Needs teacher..and had to give up my job and the life we knew and had worked so hard for. I just turned 65 this spring and finally have some pain relief from CBD. they had me on fentanyl patches at the beginning, been on codeine since then. in pain 24/7/365 for over twenty yrs. I have had four whiplashes and concussions in my life that did lots of damage…ice and I do not get along.I have had Blastomycosis twice and have damaged lungs now.
My doctor finally put me on Nabilone for my daily nausea..it is a form of marijuana that is given to chemo patients for nausea. I then tried a vapour pen of CBD..four puffs of it and for the first time in twenty yrs I was not getting that stabbing burning pain in my neck and shoulder area. I am still in pain but the pain is manageable. I obtained a prescription from my doctor for marijuana….and I am not looking back….my life has become better. I still have the same health issues including diverticulitis and IBS that nothing seems to help but diet and less stress. I think it is certainly worth talking to your doctors about. you will have to do all the research yourselves on this new therapy…the doctor will not.
I have fibro but in the last week I have been getting this sudden rush flush and burning all over even my private parts. Is this really fibro my dr does not seem to know much about it. My original diagnose was made by a professor Davies UK who was top of the field in this condition. He passed away and I have not found any one in the Uk for help