Fibromyalgia: Making Connections
Reach out to others with fibro
When it comes to building relationships, it is best to do it with people who fully understand your situation, those who also suffer from the same condition. Look for a fibromyalgia support group in your area. You can also get in touch with those movement-oriented groups, such as joining yoga classes aimed at fibromyalgia patients. Experts also advise fostering online relations through social media or looking for virtual support groups that consist of fellow fibromyalgia patients who can relate to what you are going through.
Avoid the naysayers
No matter what other people will tell you, fibromyalgia is a condition that is real. Do not listen to people who will tell you that your symptoms are all in your mind. If you can, avoid people who will refuse to understand your situation and those who will not believe that what you are going through is real. If your doctor does not acknowledge your condition, then look for another doctor who is supportive of your struggle.
Manage stress and depression
Depression is common for people with fibromyalgia. It exists along with some other symptoms, which makes the situation even worse. But there are ways to manage stress and depression and your doctor should be able to recommend a treatment plan that can ease your feeling of isolation and loneliness and help you to heal faster.
Like many conditions it is lonely but in time you get used to it. You have a choice either waste your life doing nothing or try and obtain some form of normality. It has taken me years to obtain some form of normality, and now every day and every minute and second matters. I tired to be sociable like I was once before and it just ain’t happening. I prefer to be alone tbh, I enjoy me time. Yes I was once a sociable person and enjoyed having company but now I enjoy me time.
I think the loneliness is adjusting to our new life and a new way of life, i find talking to others via the interweb very depressing and now stay of social media. The thought of going to a group which sits and talks about how we are feeling or what we experience is also daunting and depressing. My mum goes to one, she goes to pain clinic and she had told me that everyone just complains about how much pain they get into. My mum and I are like just deal with it, get on with it. The reason we say just deal with it or get on with it is because the more you sit around thinking about the pain or the isolation, the loneliness the more you feel depressed and the more pain you experience.
Taking pain meds this is another brain mess up, its been scientifically proven to. I don’t do meds no more, find something you can do and enjoy doing, find you time. This helps with a lot of parts of your life. It can keep you fit an active, your mind and body.
Since been diagnosed I have found pleasure in art and crafts. I am better than I was ten years ago but my body still requires rest and sleep.